Registries and Matching Services for Clinical Trials
Are you thinking of joining a clinical trial, but can’t find one that fits you? Consider joining a registry or matching service to help advance research on Alzheimer’s disease and dementia.
All studies have rules, called inclusion and exclusion criteria, that limit who can participate. (Learn more about how clinical trials work.) And even studies you’re eligible for might not be available in the right place at the right time for you. However, you can make yourself available to many local and national studies by joining a registry or matching service.
Registries help speed up trials by gathering a list of “willing and able” potential participants. People who sign up may be referred to specific studies but are not obligated to participate. Some studies may be simple, like a survey, and can be done anywhere.
The following registries accept adult participants with a variety of backgrounds.
Alzheimer’s Prevention Registry
Open to individuals age 18 and older who are interested in learning about and possibly participating in Alzheimer’s prevention clinical studies and trials.
Alzheimer’s Prevention Trials (APT) Webstudy
Online registry designed to accelerate enrollment into Alzheimer's clinical trials. Open to individuals 50 and older. Take online tests to assess memory and thinking skills, gain access to scores, and be notified of opportunities for in-person assessments and clinical trials.
Asian Cohort for Alzheimer’s Disease (ACAD)
Online registry for people of Chinese, Korean, and Vietnamese ancestry to understand the impact of genetic factors on Alzheimer’s risk. Complete health and lifestyle questionnaires, receive cognitive testing, and provide a saliva or blood sample for genetic analysis.
Brain Health Registry
Open to individuals age 18 and older who want to promote healthy brain function by reducing the risk of brain diseases, disorders, and injuries. Take online tests, and learn about opportunities to participate in a wide range of studies.
Online registry for Asian Americans and Pacific Islanders who are interested in participating in research related to Alzheimer's disease and related dementias, aging, caregiving, and other health topics across the lifespan.
Cleveland Clinic Healthy Brains Registry
Online registry that includes a brain health assessment with personalized recommendations. Learn about clinical trials and studies, news, and events. Brain health information resources are available in English and Spanish.
FTD Disorders Registry
A contact and research registry for people diagnosed with frontotemporal disorders (FTDs). It is open to family members, caregivers, or friends of people diagnosed with an FTD.
Online research study designed to analyze how brain performance changes with age. Individuals age 18 or older take a 10-minute online test and join a registry of people who may be contacted for future research studies of the aging brain.
A service, funded by NIH, that helps match people of all ages interested in clinical trials with researchers.
The Alzheimer’s Association’s clinical studies matching service for individuals with Alzheimer’s, caregivers, and healthy volunteers.
Trial-Ready Cohort – Down Syndrome
Registry to enroll people with Down syndrome who have no symptoms of dementia to participate in future Alzheimer's disease prevention studies. Participants will undergo cognitive and clinical assessments, brain imaging, genetic and biomarker testing, and receive referrals for other studies.
For further assistance with finding opportunities to participate in research, contact the NIA ADEAR Center via email or phone at 800-438-4380.
This content is provided by the NIH National Institute on Aging (NIA). NIA scientists and other experts review this content to ensure it is accurate and up to date.
October 18, 2021