Heath and Aging

End of Life: Helping with Comfort and Care

Resources

older hand held by younger handsIf you are interested in learning more, here is a sampling of resources. Some of these are also listed at the end of most chapters.

AARP
1-888-687-2277 (toll-free)
1-877-342-2277 (español/línea gratis)
1-877-434-7598 (TTY/toll-free)
member@aarp.org (email)
www.aarp.org

Aging with Dignity
1-888-594-7437 (toll-free)
fivewishes@agingwithdignity.org (email)
www.agingwithdignity.org

Alzheimer’s Association
1-800-272-3900 (toll-free)
1-866-403-3073 (TTY/toll-free)
info@alz.org (email)
www.alz.org

Alzheimer’s Foundation of America
1-866-232-8484 (toll-free)
info@alzfdn.org (email)
www.alzfdn.org

American Academy of Hospice and Palliative Medicine
info@aahpm.org (email)
www.palliativedoctors.org

American Academy of Pain Medicine
1-847-375-4731
info@painmed.org (email)
www.painmed.org

American Bar Association
1-800-285-2221 (toll-free)
www.americanbar.org/contactus (email form)
www.americanbar.org

American Board of Wound Management
1-202-457-8408
info@abwmcertified.org (email)
www.aawm.org

American Geriatrics Society
Health in Aging Foundation
1-800-563-4916 (toll-free)
info@healthinaging.org (email)
www.healthinaging.org

American Music Therapy Association
1-301-589-3300
info@musictherapy.org (email)
www.musictherapy.org

Association for Conflict Resolution
1-202-780-5999
admin@acrnet.org (email)
www.acrnet.org

CaringBridge
www.caringbridge.org

CaringInfo
(See National Hospice and Palliative Care Organization)

Center for Elder Care and Advanced Illness
Altarum Institute
1-202-776-5100
eldercare@altarum.org (email)
www.altarum.org/cecai

Center for Practical Bioethics
1-800-344-3829 (toll-free)
info@practicalbioethics.org (email)
www.practicalbioethics.org

Centers for Medicare and Medicaid Services
1-800-633-4227 (toll-free)
1-877-486-2048 (TTY/toll-free)
www.medicare.gov

Center to Advance Palliative Care
1-212-201-2670
capc@mssm.edu (email)
www.getpalliativecare.org

Department of Veterans Affairs
Veterans Benefits Administration
Veterans Health Administration
VA benefits: 1-800-827-1000 (toll-free)
To speak with a healthcare benefits counselor: 1-877-222-8387 (toll-free)
www.va.gov

Donate Life America
1-804-377-3580
donatelifeamerica@donatelife.net (email)
www.donatelife.net

Education in Palliative and End-of-life Care (EPEC)
1-312-503-3732
info@epec.net (email)
www.epec.net

Eldercare Locator
1-800-677-1116 (toll-free)
www.eldercare.gov

Family Caregiver Alliance
1-800-445-8106 (toll-free)
info@caregiver.org (email)
www.caregiver.org

Federal Trade Commission
1-877-382-4357 (toll-free)
www.ftc.gov

Growth House
1-415-863-3045
info@growthhouse.org (email)
www.growthhouse.org

Hospice Association of America
National Association for Home Care and Hospice
1-202-546-4759
www.nahc.org/HAA

Hospice and Palliative Nurses Association
1-412-787-9301
hpna@hpna.org (email)
http://hpna.advancingexpertcare.org

Hospice Foundation of America
1-800-854-3402 (toll-free)
info@hospicefoundation.org (email)
www.hospicefoundation.org
www.hospicedirectory.org

Hospice Net
info@hospicenet.org (email)
www.hospicenet.org

The Living Bank
1-800-528-2971 (toll-free)
info@livingbank.org (email)
www.livingbank.org

National Alliance for Caregiving
1-301-718-8444
info@caregiving.org (email)
www.caregiving.org

National Alliance for Hispanic Health
1-866-783-2645 (English and Spanish; toll-free)
membership@healthyamericas.org (email)
www.hispanichealth.org

National Cancer Institute
1-800-422-6237 (toll-free)
cancergovstaff@mail.nih.gov (email)
www.cancer.gov
www.cancer.gov/cancertopics/factsheet/support/end-of-life-care

National Hospice and Palliative Care Organization
1-800-658-8898 (toll-free)
caringinfo@nhpco.org (email)
www.caringinfo.org
www.nhpco.org

National Institute of Nursing Research
1-301-496-0207
info@ninr.nih.gov (email)
www.ninr.nih.gov

National Library of Medicine
www.medlineplus.gov
Search for:
“Advance Directives”
“Bereavement”
“End-of-Life Issues”
“Hospice Care”
“Organ Donation”
“Pain”

OrganDonor.gov
Health Resources and Services Administration
U.S. Department of Health and Human Services
donation@hrsa.gov (email)
www.organdonor.gov

Physician Orders for Life-Sustaining Treatment Paradigm (POLST)
1-503-494-4463
info@polst.org (email)
www.polst.org

PostHope
http://posthope.org

PREPARE
1-415-735-1106
info@prepareforyourcare.org (email)
www.prepareforyourcare.org

Society of Critical Care Medicine
1-847-827-6869
info@sccm.org (email)
www.myicucare.org/Pages/default.aspx

Social Security Administration
1-800-772-1213 (toll-free)
1-800-325-0778 (TTY/toll-free)
www.socialsecurity.gov

U.S. Department of Health and Human Services
www.alzheimers.gov

Visiting Nurse Associations of America
1-888-866-8773 (toll-free)
vnaa@vnaa.org (email)
www.vnaa.org

Well Spouse Association
1-800-838-0879 (toll-free)
info@wellspouse.org (email)
www.wellspouse.org

What Matters Now
www.whatmattersnow.org

For more information on health and aging, contact:

National Institute on Aging Information Center
P.O. Box 8057
Gaithersburg, MD 20898-8057
1-800-222-2225 (toll-free)
1-800-222-4225 (TTY/toll-free)
niaic@nia.nih.gov (email)
www.nia.nih.gov

Sign up for regular email alerts about new publications and other information from the NIA.

Visit www.nihseniorhealth.gov, a senior-friendly website from the National Institute on Aging and the National Library of Medicine. This website has health and wellness information for older adults, including information about end of life care. Special features make it simple to use. For example, you can click on a button to make the type larger.

To learn more about Alzheimer’s disease, contact NIA’s ADEAR Center at:

Alzheimer’s Disease Education and Referral (ADEAR) Center
1-800-438-4380 (toll-free)
adear@nia.nih.gov (email)
www.nia.nih.gov/alzheimers

Photos: Cover and pages 2, 18, 33, 50, 67—Pam Soorenko, Photogroup, Silver Spring, MD

Page 73—Stock photo, MediaBakery.com, Santa Barbara, CA

We would like to thank these groups for their help with photography for this publication—the NIH Clinical Center, the NIH Clinical Center fifth floor nursing staff, and the Berry-Woodyard family of Takoma Park, MD.

National Institute on Aging
National Institutes of Health
U.S. Department of Health and Human Services

Publication Date: July 2016
Page Last Updated: August 10, 2016