Alzheimer's Caregiving: Caring for Yourself
Taking care of yourself — physically and mentally — is one of the most important things you can do as a caregiver. This could mean asking family members and friends to help out, doing things you enjoy, or getting help from a home health care service. Taking these actions can bring you some relief. It also may help keep you from getting ill or depressed.
Ways to take care of yourself
Here are some ways you can take care of yourself:
- Ask for help when you need it.
- Eat healthy foods.
- Join a caregiver's support group.
- Take breaks each day.
- Spend time with friends.
- Keep up with your hobbies and interests.
- Get exercise as often as you can.
- See your doctor on a regular basis.
- Keep your health, legal, and financial information up-to-date.
Asking for help
Everyone needs help at times. However, many caregivers find it hard to ask for help. They may feel they should be able to do everything themselves, or that it's not all right to leave the person in their care with someone else. Or maybe they can't afford to pay someone to watch the person for an hour or two.
Here are some tips about asking for help:
- Remind yourself that it's okay to ask for help from family, friends, and others. You don't have to do everything yourself.
- Ask people to help out in specific ways, like making a meal, visiting the person, or taking the person out for a short time.
- Call for help from home health care or adult day care services when needed. To find providers in your area, contact Eldercare Locator.
- Use national and local resources to find out how to pay for some of this help or get respite care services.
You may want to join a support group of Alzheimer's disease caregivers. These groups meet in person or online to share experiences and tips and give each other support. Ask your doctor, check online, or contact the local chapter of the Alzheimer's Association.
Coping with emotions and stress
Caring for a person with Alzheimer's takes a lot of time and effort. Your job can become even harder when the person gets angry with you, hurts your feelings, or forgets who you are. Sometimes, you may feel discouraged, sad, lonely, frustrated, confused, or angry. These feelings are normal.
Here are some things you can say to yourself that might help you feel better:
- I'm doing the best I can.
- What I'm doing would be hard for anyone.
- I'm not perfect, and that's okay.
- I can't control some things that happen.
- Sometimes, I just need to do what works for right now.
- I will enjoy the moments when we can be together in peace.
- Even when I do everything I can think of, the person with Alzheimer's disease will still have problem behaviors because of the illness, not because of what I do.
- I will try to get help from a counselor if caregiving becomes too much for me.
Some caregivers find that going to a church, temple, or mosque helps them cope with the daily demands placed on them. For others, simply having a sense that larger forces are at work in the world helps them find a sense of balance and peace.
Getting professional help
Mental health professionals and social workers help you deal with any stress you may be feeling. They help you understand feelings, such as anger, sadness, or feeling out of control. They can also help you make plans for unexpected or sudden events.
Mental health professionals charge by the hour. Medicare, Medicaid, and some private health insurance plans may cover some of these costs. Ask your health insurance plan which mental health counselors and services it covers. Then check with your doctor, local family service agencies, and community mental health agencies for referrals to counselors.
More tips for self-care
Here are other things to keep in mind as you take care of yourself:
- Understand that you may feel powerless and hopeless about what's happening to the person you care for.
- Understand that you may feel a sense of loss and sadness.
- Understand why you've chosen to take care of the person with Alzheimer's disease. Ask yourself if you made this choice out of love, loyalty, a sense of duty, a religious obligation, financial concerns, fear, a habit, or self-punishment.
- Let yourself feel day-to-day "uplifts." These might include good feelings about the person you care for, support from other people, or time spent on your own interests.
Caregivers and clinical trials
As a full-time caregiver to his parents, Will discusses how participating in a clinical trial helped him take better care of himself physically and receive emotional support from other caregivers in his community.
Resources to relieve caregiver stress
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For more information about caring for yourself
NIA Alzheimer’s and related Dementias Education and Referral (ADEAR) Center
The NIA ADEAR Center offers information and free print publications about Alzheimer’s and related dementias for families, caregivers, and health professionals. ADEAR Center staff answer telephone, email, and written requests and make referrals to local and national resources.
Explore the Alzheimers.gov website for information and resources on Alzheimer’s and related dementias from across the federal government.
National Respite Locator Service
This content is provided by the NIH National Institute on Aging (NIA). NIA scientists and other experts review this content to ensure it is accurate and up to date.
May 17, 2017