Alzheimer's Disease Education and Referral Center

Alzheimer's Disease Genetics Study

Alzheimer's Disease Genetics Study

Overall Status: 
Recruiting
Brief Description: 

The purpose of the Alzheimer's Disease Genetics Study is to identify and analyze the genes that cause late-onset Alzheimer's disease. Researchers are collecting genetic material from families in the United States in which two or more members have late-onset Alzheimer's.

Patient Qualifications: 
Min AgeMax AgeGenderHealthy Volunteers
N/A
N/A
Both
Accepts Healthy Volunteers
Inclusion Criteria: 
    • Two living family members diagnosed with Alzheimer's disease or other dementia with any age of onset
    • Biological samples available, such as fresh blood, immortalized lymphoblastic cell lines, or 3-5 grams of frozen cerebral cortex (fixed samples are not accepted)
Exclusion Criteria: 
    • Member of a family included in the National Institute of Mental Health AD Genetics Sib Pair collection
Detailed Description: 

Qualifying families have two living, blood-related individuals who have been diagnosed with or are showing symptoms of Alzheimer's disease or dementia. Local study sites are located across the United States. Arrangements may be made for eligible families who do not live near a participating site. The biological samples and data from participants will be made available to qualified researchers.

This study does not include genetic counseling because no personal identifying information such as name or date of birth is attached to samples. Results of individual tests are not available to participants or family members.

Locations: 
Map Marker CityStateZip CodeStatusPrimary Contact

Geolocation is 39.7794767, -86.1700894

Participants are being recruited from all over the United States
Nationwide
Indiana
46202
Recruiting
NCRAD Study Coordinator800-526-2839alzstudy@iupui.edu
Lead Sponsor: 
Agency
Indiana University
Collaborator Sponsor: 
Agency
National Institute on Aging (NIA)
Facility Investigators: 
NameRoleAffiliation
Tatiana M. Foroud, PhD
Principal Investigator
National Cell Repository for Alzheimer's Disease (NCRAD), Indiana University
Study Contact: 
NamePhoneEmail
NCRAD Study Coordinator
1-800-526-2839
Locations
 
 
ClinicalTrials.gov ID 
NCT00064870 (follow link to view full record on ct.gov in new window)
Official Title: 
National Cell Repository for Alzheimer's Disease (NCRAD)
Study Start Date: 
June 2002
Study End Date: 
July 2021
Enrollment: 
3000