Skip to main content

Dementia Care Summit Agenda 2020

PLEASE NOTE: The 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers has been canceled. Visit the main summit webpage for more information.

DAY ONE: Tuesday, March 24, 2020

8:00 – 8:15 a.m. Welcoming Remarks

2020 Summit Co-Chairs: Jennifer Wolff, Johns Hopkins University, and David Reuben, University of California, Los Angeles (UCLA)

8:15 – 8:30 a.m. Perspectives

Richard Hodes, Director, National Institute on Aging
Lonni Schicker, 2020 Summit Steering Committee Member and Minnesota State University (Retired)
Katie Brandt, 2020 Summit Steering Committee Member, Co-chair of the NAPA Advisory Council on Alzheimer’s Research, Care, and Services, and Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit

8:30 – 9:30 a.m. Progress and Related Activities

National Plan to Address Alzheimer’s Disease and the Advisory Council on Alzheimer’s Research, Care, and Services

Arne Owens, Deputy Assistant Secretary, Office of the Assistant Secretary for Planning and Evaluation, Department of Health and Human Services

Progress Since the 2017 Care and Services Research Summit

Laura Gitlin, Drexel University

Agency for Healthcare Research and Quality Evidence Review

Mary Butler, University of Minnesota

The NASEM Committee on Care Interventions for People with Dementia (PWD) and Their Caregivers

Clare Stroud, National Academies of Sciences, Engineering, and Medicine (NASEM)

Decadal Survey of Behavioral and Social Science Research on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias

Molly Checksfield, NASEM

9:30 – 9:45 a.m. BREAK

9:45 – 11:30 a.m. Theme 1: Impact of Dementia

Chairs: María Aranda, University of Southern California and Ian Kremer, LEAD Coalition

Speakers

Population trends of Alzheimer’s disease and related dementias

Rachel Whitmer, University of California, Davis

Disparities in health, services, and interventions for persons with dementia and family caregivers: Evidence and future directions

Ladson Hinton, University of California, Davis

Economic impact of Alzheimer’s disease and the value of delaying onset for individuals, caregivers, and society

Julie Zissimopoulos, University of Southern California

Research Gaps and Opportunities

  • María Aranda and Ian Kremer

Panelists

  • Chanee Fabius, Johns Hopkins University
  • Cynthia Huling Hummel, Retired Pastor and Member of the Dementia Action Alliance Advisory Board, the Advisory Panel to the NASEM AD/ADRD Decadal Survey Committee, and the Alzheimer’s Clinical Trials Consortium Research Participant Advisory Board
  • Laura Trejo, City of Los Angeles Department of Aging

10:45 – 11:30 Moderated Discussion and Q&A

11:30 – 12:30 p.m. LUNCH

12:30 – 2:15 p.m. Theme 2: Long-Term Services and Supports in Home, Community, and Residential Care Settings for Persons with Dementia and their Caregivers

Chairs: Sheryl Zimmerman, University of North Carolina at Chapel Hill Sheps Center for Health Services Research and Schools of Social Work and Public Health, and Robyn Stone, LeadingAge

Speakers

Evidence-based person-centered practices for persons with dementia and their caregivers: What do we know, where to next?

Kimberly Van Haitsma, Pennsylvania State University College of Nursing

Understanding the long-term care workforce in a new way

Joanne Spetz, University of California, San Francisco

Organization and financing of long-term supports and services for persons living with dementia

David Stevenson, Vanderbilt University School of Medicine

Research Gaps and Opportunities

  • Sheryl Zimmerman and Robyn Stone

Panelists

  • Alice Bonner, Johns Hopkins University School of Nursing and Institute for Healthcare Improvement
  • Laurie Scherrer, Member of Dementia Action Alliance Board of Directors and Dementia Action Alliance Advisory Board, Mentor for Dementia Mentors, International Speaker
  • Michelle Kraus, Ingleside at King Farm

1:30 – 2:15 p.m. Moderated Discussion and Q&A

2:15 – 2:30 p.m. BREAK

2:30 – 4:15 p.m. Theme 3: Services and Supports in Medical Care Settings for Persons with Dementia

Chairs: Chris Callahan, Indiana University School of Medicine, and Susan Beane, Healthfirst

Speakers

Providing high-quality care in medical care settings

Josh Chodosh, NYU Grossman School of Medicine

Care of persons living with dementia with multiple chronic conditions

Cynthia Boyd, Johns Hopkins University

Financing the care of persons living with dementia

Norma Coe, University of Pennsylvania

Research Gaps and Opportunities

  • Chris Callahan and Susan Beane

Panelists

  • George Hennawi, MedStar Good Samaritan Hospital and the Center for Successful Aging
  • Shari Ling, Centers for Medicare and Medicaid Services
  • Arnetta Whitaker, Home Care Partners

3:30 – 4:15 p.m. Moderated Discussion and Q&A

4:15 – 5:15 p.m. The Present and Future of Integrated Long-Term and Medical Care

Chairs: Chris Callahan, Indiana University School of Medicine, and Robyn Stone, LeadingAge

Speakers

Building the Case for Integrating LTSS and Medical Care and their Financing for Persons Living with Dementia and their Families

Kerry Branick, Centers for Medicare and Medicaid Services

Signals on Successful Approaches to Integrating LTSS and Medical Care for Persons Living with Dementia

Bruce Leff, Johns Hopkins University

Research Gaps and Opportunities

  • Chris Callahan and Robyn Stone

Panelists

  • Alice Bonner, Johns Hopkins University School of Nursing and Institute for Healthcare Improvement
  • David Stevenson, Vanderbilt University School of Medicine
  • Shari Ling, Centers for Medicare and Medicaid Services (CMS)

4:45 – 5:15 p.m. Moderated Discussion and Q&A

5:15 – 5:30 p.m. Day 1 Closing Remarks

David Reuben and Jennifer Wolff, Summit Co-Chairs

5:30 p.m. Adjourn Day 1

DAY TWO: Wednesday, March 25, 2020

8:00 – 8:15 a.m. Welcome

2020 Summit Co-Chairs: David Reuben and Jennifer Wolff

8:15 – 10:00 a.m. Theme 4: Participation of Persons with Dementia and their Caregivers in Research

Chairs: Jason Karlawish (Penn Memory Center) and Lori Frank (RAND Corporation)

Speakers

Reporters, data sources, and outcomes

Lee Jennings, University of Oklahoma Health Sciences Center

Nomenclature: Challenges, issues, and a plan

Ron Petersen, Mayo Alzheimer’s Disease Research Center, Mayo Clinic College of Medicine

Persons living with dementia and caregiver research engagement

Tabassum Majid, University of Maryland, Baltimore County

Research Gaps and Opportunities

  • Jason Karlawish and Lori Frank

Panelists

  • Lonni Schicker, Summit Steering Committee Member and Minnesota State University (Retired)
  • Andrea Gilmore-Bykovskyi, University of Wisconsin-Madison

9:15 – 10:00 a.m. Moderated Discussion and Q&A

10:00 – 10:15 a.m. BREAK

10:15 – 12:00 p.m. Theme 5: Intervention Research, Dissemination, and Implementation

Chairs: Malaz Boustani, Sandra Eskenazi Center for Brain Care Innovation and Indiana University Center for Health Innovation and Implementation Sciencem and Michael Monson, Centene Corporation

Speakers

Developing and disseminating evidence-based scalable care models

Jürgen Unützer, University of Washington

Current challenges in implementation science, and implications for improving the care of persons living with dementia

Luci Leykum, South Texas Veterans Health Care System and University of Texas at Austin

Learning health systems

Elizabeth McGlynn, Kaiser Permanente Research

Research Gaps and Opportunities

  • Malaz Boustani and Michael Monson

Panelists

  • Nuper Mehta, CareMore Health
  • Lisa Onken, National Institute on Aging

11:15 – 12:00 p.m. Moderated Discussion and Q&A

12:00 – 12:30 Lightning Round Poster Previews

12:30 – 1:00 LUNCH

1:00 – 1:45 p.m. Poster Session

1:45 – 3:30 p.m. Theme 6: Research Resources, Methods, and Data Infrastructure

Chairs: Vincent Mor, Brown University, and Joanne Pike, Alzheimer’s Association

Speakers

Identification of People Living with Dementia for Population and Health Care Research

Julie Bynum, University of Michigan

System Level Research: Pragmatic Clinical Trials in Dementia

Thomas Travison, Harvard University

Consent for Research Involving Dementia: Ethical Considerations

David Wendler, Department of Bioethics, National Institutes of Health Clinical Center

Research Gaps and Opportunities

  • Vincent Mor and Joanne Pike

Panelists

  • Joe Chung, Kinto and Redstar Ventures
  • Craig Thomas, Centers for Disease Control and Prevention
  • Maggi Miller, University of South Carolina

2:45 – 3:30 p.m. Moderated Discussion and Q&A

3:30 – 3:45 p.m. BREAK

3:45 – 5:15 p.m. Emerging Topics Session

Chairs: Jennifer Wolff, Johns Hopkins University, and David Reuben, UCLA

Speakers

Emotional functioning in persons living with dementia and their care partners

Joan Monin, Yale University

Technological Reserve in Persons with Dementia: The Promise and Pitfalls of Smart Systems for Health, Well-Being, and Independence

Jared Benge, Baylor Scott & White Health

Implications of identification at preclinical stages of dementia

Christine Cassel, University of California, San Francisco

Panelists

  • Ed Patterson, Member of the Persons Living with Dementia Stakeholder Group, the Alzheimer’s Association 2019-2020 National Early-Stage Advisory Group, the Advisory Panel to the NASEM AD/ADRD Decadal Survey Committee, Public Policy Advocate, and Community Representative in Program Management
  • David Sims, Care Partner
  • Venoreen Browne-Boatswain, Care Partner

4:30 – 5:15 p.m. Moderated Discussion and Q&A

5:15 – 5:30 p.m. Summit Closing Remarks

Katie Brandt, 2020 Summit Steering Committee Member, Co-chair of the NAPA Advisory Council on Alzheimer’s Research, Care, and Services, and Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit
David Reuben, UCLA
Jennifer Wolff, Johns Hopkins University

5:30 p.m. Summit Adjourns