Lewy Body Dementia: Information for Patients, Families, and Professionals

Resources

Federal Government

National Institute on Aging
Alzheimer’s Disease Education and Referral (ADEAR) Center

1-800-438-4380 (toll-free)
adear@nia.nih.gov
www.nia.nih.gov/alzheimers

National Institute of Neurological Disorders and Stroke
1-800-352-9424 (toll-free)
www.ninds.nih.gov

MedlinePlus
National Library of Medicine
www.medlineplus.gov
www.medlineplus.gov/spanish

General Information

Lewy Body Dementia Association
1-800-539-9767 (toll-free LBD Caregiver Link)
1-404-935-6444 (national office)
lbda@lbda.org
www.lbda.org

Michael J. Fox Foundation for Parkinson’s Research
1-800-708-7644 (toll-free)
www.michaeljfox.org

National Parkinson Foundation
1-800-473-4636 (toll-free helpline)
contact@parkinson.org
www.parkinson.org

Parkinson’s Disease Foundation
1-800-457-6676 (toll-free helpline)
info@pdf.org
www.pdf.org

Support Services and Resources

Eldercare Locater
This service of the U.S. Administration on Aging connects the public to community services for older adults and their families.
1-800-677-1116 (toll-free)
www.eldercare.gov

Family Caregiver Alliance
The Alliance provides information and referral, education, and other services to caregivers of people with chronic, disabling health conditions.
1-800-445-8106 (toll-free)
info@caregiver.org
www.caregiver.org

For Children and Teens

Although the following Alzheimer’s organizations are not specific to Lewy body dementia, their dementia-related resources and networks may be helpful for children and teens.

ADEAR Center Resources for Children and Teens
www.nia.nih.gov/alzheimers/resources-children-and-teens-about-alzheimers

Alzheimer’s Association Kids & Teens
1-800-272-3900 (toll-free)
www.alz.org/living_with_alzheimers_just_for_kids_and_teens.asp

Alzheimer’s Foundation of America (AFA) Teens
1-866-232-8484 (toll-free)
www.afateens.org

Diagnosis, Treatment, and Research

The Lewy Body Dementia Association (LBDA) maintains a list of its scientific and medical advisors. Many of these physicians see patients at their clinics or may make referrals to other specialists in your area. See www.lbda.org/content/lbda-scientific-advisory-council-sac. For general tips on finding a doctor, visit www.lbda.org/content/finding-doctor-diagnose-and-treat-lbd.

The Alzheimer’s Disease Education and Referral Center maintains a list of research centers funded by the National Institute on Aging at NIH where you may find medical specialists in Lewy body dementia: www.nia.nih.gov/alzheimers/alzheimers-disease-research-centers. Professionals may also find dementia resources.

The American Academy of Neurology has a “find a neurologist” page on its website: http://patients.aan.com/findaneurologist

The American Association for Geriatric Psychiatry has a physician finder on its website: www.gmhfonline.org

Publication Date: September 2015
Page Last Updated: September 29, 2015