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The STELLA Collaborative: Using Technology to Advance Alzheimer's Disease and Related Dementias Family Education and Support

Recruiting

Caring for a family member with Alzheimer's disease or a related dementia can come with many burdens that affect a care partners' physical and mental health and create barriers to accessing care and support. This study will test a videoconference-based intervention, Support via Technology: Living and Learning with Advancing Alzheimer's Disease and Related Dementias (STELLA). STELLA is designed to provide education and support to family caregivers, as well as the person with dementia, and to reduce upsetting behaviors and care partner burden.

Minimum Age Maximum Age Gender Healthy Volunteers
18 Years N/A All Yes
February 24, 2020
February 1, 2022
80

Care Recipient

  • Diagnosis of moderate to late-stage Alzheimer's disease or a related dementia
  • Exhibits two or more behaviors listed on Revised Memory and Behavioral Problems Checklis that are bothersome to the care partner and occur three or more times per week at the time of study enrollment
  • A family member of person receiving the care (e.g, a relative, spouse, or close kin that is considered family)

Caregiver or Care Partner

  • An adult caring for family member with Alzheimer's disease or a related dementia
  • Lives with care recipient or spends at least four hours per week with care recipient
  • 18 years of age or older
  • Speaks English
  • Owns a computer or device with a reliable internet connection and compatible operating system

Care Recipient

  • Dementia diagnosis that is not related to Alzheimer's disease or a related dementia
  • Unable to leave care partner or caregiver during training
  • Early-stage Alzheimer's disease or a related dementia, as defined by a Montreal Cognitive Assessment score of about 15 or higher

Caregiver or Care Partner

  • Unable to privately attend one-on-one training sessions
  • Participated in similar study within the last year
  • Hearing and vision problems severe enough to prevent participation
  • Unwilling or unable to adequately follow study instructions and participate in study procedures

Participants will remotely attend eight sessions using STELLA. Each weekly session will take about one hour. The first four sessions will be one-on-one and allow for the care partner and the guide to identify behaviors of the person with dementia that are upsetting to the family. Care partners will be taught to use an Activator, Behavior, Consequence (ABC) approach to identify triggers, the behaviors, and consequences of the behaviors. After identifying the ABCs, a plan to address the behavior will be created and then tested. In the next four sessions, care partners will meet in small groups with a guide. Strategies for communicating effectively, engaging in pleasant events, and coping will be addressed.

Name City State Zip Status Primary Contact
Oregon Health and Science University, Layton Aging and Alzheimer's Disease Center
Portland Oregon 97239 Recruiting Allison Lindauer, PhD
503-494-6976
lindauer@ohsu.edu

Oregon Health and Science University

  • National Institute on Aging (NIA)

Name Role Affiliation
Allison Lindauer, PhD Principal Investigator Oregon Health and Science University

Name Phone Email
Allison Lindauer, PhD 503-494-6976 lindauer@ohsu.edu

NCT04335110

The STELLA Collaborative: Using Technology to Advance ADRD Family Education and Support