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Skills Training for LGBT Dementia Caregivers

Recruiting

This study will test the effectiveness of an in-person caregiver skills training program to improve the quality of life of lesbian, gay, bisexual, and transgender (LGBT) dementia caregivers.

Minimum Age Maximum Age Gender Healthy Volunteers
18 Years N/A All Yes
July 10, 2020
June 2022
45

  • Self-identification as a LGBT adult
  • Provides informal care to a family member or friend with dementia
  • Available to attend all caregiver training classes and one focus group session
  • Willing to provide a blood sample

  • Significant neurological disease, stroke, traumatic brain injury, or significant head trauma
  • Any significant illness or unstable medical condition that could affect cognition or cause difficulty following study directions
  • History of alcohol substance abuse or dependence
  • Current participation in another research study
  • Dementia care recipient lives in a skilled nursing facility

The LGBT Savvy program is designed to address the unique needs of LGBT caregivers of people living with dementia. This training program uses the Savvy Caregiver program as a foundation with themes of physical, interpersonal, financial, social, and environmental stressors specific to LGBT caregivers.

Participants will be randomly assigned to either the LGBT Savvy Group program or the Savvy Caregiver program. Each participant will attend weekly, two-hour, in-person caregiver classes for six weeks, and one 90-minute focus group to discuss their experiences with the program. The researchers will also use blood tests to measure stress levels and questionnaires to measure program effectiveness.

Name City State Zip Status Primary Contact
Emory Goizueta Alzheimer's Disease Research Center
Atlanta Georgia 30322 Recruiting Whitney Wharton, PhD
404-712-7359
w.wharton@emory.edu

Emory University

Name Role Affiliation
Whitney Wharton, PhD Principal Investigator Emory University

Name Phone Email
Whitney Wharton, PhD 404-712-7359 w.wharton@emory.edu
Morgan Hecker 404-712-2654 morgan.hecker@emory.edu

NCT04394260

Equality in Caregiving: Intervention to Facilitate Caregiver Mastery Among LGBT Caregivers of PLWD