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Residential Care Transition for Family Caregivers

Recruiting

This study will explore the effect of consultation sessions on reducing distress and strain in family caregivers who have transitioned a cognitively impaired relative to long-term care.

Minimum Age Maximum Age Gender Healthy Volunteers
21 Years N/A All Yes
December 2016
May 2021
240

  • Caregivers of relatives who have Alzheimer's disease or a related dementia
  • Visit and provide assistance to relatives in long-term care
  • Stable dosage of psychotropic medications, such as antidepressants or antipsychotics, for 3 months
  • Fluent in English

  • Participation in other one-to-one psychosocial consultations (support groups excluded)

Research on family caregiving and institutionalization has shown that families continue to remain involved in care activities after admission of a cognitively impaired relative to a long-term care setting, such as a nursing home or assisted living unit. In some cases, caregiver stress and depression remain stable or even increase.

This study is designed to determine whether and how the Residential Care Transition Module can help reduce family members' stress, negative mental health, and strain. In the treatment group, caregivers will meet with a trained transition counselor for six formal consultation sessions over 4 months. Sessions will focus on the caregiver's experiences, stressors, family dynamics, and roles of different family members, as well as on family member communication and effective ways to advocate for their relative in long-term care. For the usual care control group, counselors will provide quarterly contact calls, and a research coordinator will send a biannual project newsletter.

Name City State Zip Status Primary Contact
University of Minnesota, School of Nursing, 6-153 Weaver-Densford Hall
Minneapolis Minnesota 55455 Recruiting Joseph E. Gaugler, PhD
612-626-2485
gaug0015@umn.edu

University of Minnesota - Clinical and Translational Science Institute

  • Johns Hopkins University
  • New York University School of Medicine
  • Benjamin Rose Institute
  • Emory University

Name Role Affiliation
Joseph E. Gaugler, PhD Principal Investigator University of Minnesota - Clinical and Translational Science Institute

Name Phone Email
Joseph E. Gaugler, PhD 612-626-2485 gaug0015@umn.edu

NCT02915939

The Residential Care Transition Module