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Palliative Care for Cognitively Impaired People and Their Families

Recruiting

This study aims to evaluate an early palliative-care intervention for people with cognitive impairment and their family caregivers, assessing the intervention's impact on symptoms, quality of life and healthcare use.

Minimum Age Maximum Age Gender Healthy Volunteers
N/A N/A All No
December 18, 2019
December 31, 2023
200

  • Enrolled in the Stanford University Alzheimer's Disease Research Center
  • Live in the community

  • Severe dementia
  • Participants who live alone and don't have a proxy will be excluded only if they are deemed as lacking capacity to provide informed consent at the time of entry into the study.

There is an urgent need to improve the palliative care of people with dementia living in the community. Participants drawn from the Stanford University Alzheimer's Disease Research Center will be randomly assigned to either usual care or a nurse-led supportive care intervention, consisting of an assessment and coaching delivered over one year. The intervention will involve a two-hour house call, followed by 11 monthly, 30-minute phone assessments plus usual care.

The study aims are to determine whether the intervention will lead to lower symptom burden, higher quality of life, lesser resource use (e.g., hospital admissions and days, emergency visits) and greater patient activation. 

Name City State Zip Status Primary Contact
VJ Periyakoil
Palo Alto California 94304 Recruiting VJ Periyakoil, MD
650-493-5000
periyakoil@stanford.edu

Stanford University

  • National Institute on Aging (NIA)

Name Role Affiliation
VJ Periyakoil, MD Principal Investigator Stanford University

Name Phone Email
VJ Periyakoil, MD 650-723-4000 periyakoil@stanford.edu

NCT03881579

Supportive Care for Cognitively Impaired Patients and Families