Palliative Care for Cognitively Impaired People and Their Families
This study aims to evaluate an early palliative-care intervention for people with cognitive impairment and their family caregivers, assessing the intervention's impact on symptoms, quality of life and healthcare use.
|Minimum Age||Maximum Age||Gender||Healthy Volunteers|
- Enrolled in the Stanford University Alzheimer's Disease Research Center
- Live in the community
- Severe dementia
- Participants who live alone and don't have a proxy will be excluded only if they are deemed as lacking capacity to provide informed consent at the time of entry into the study.
There is an urgent need to improve the palliative care of people with dementia living in the community. Participants drawn from the Stanford University Alzheimer's Disease Research Center will be randomly assigned to either usual care or a nurse-led supportive care intervention, consisting of an assessment and coaching delivered over one year. The intervention will involve a two-hour house call, followed by 11 monthly, 30-minute phone assessments plus usual care.
The study aims are to determine whether the intervention will lead to lower symptom burden, higher quality of life, lesser resource use (e.g., hospital admissions and days, emergency visits) and greater patient activation.
VJ Periyakoil, MD
- National Institute on Aging (NIA)
|VJ Periyakoil, MD||Principal Investigator||Stanford University|
|VJ Periyakoil, MDfirstname.lastname@example.org|
Supportive Care for Cognitively Impaired Patients and Families