Skip to main content

Online Self-Management Workshop for Rural Dementia Caregivers

Recruiting

This study will test the effectiveness of an interactive online workshop for rural caregivers, called Building Better Caregivers. The workshop is designed to provide support for isolated dementia caregivers in rural areas and reduce caregiver stress and depression symptoms.

Minimum Age Maximum Age Gender Healthy Volunteers
18 Years N/A All Yes
June 5, 2020
May 2023
640

  • Caregiver for a person with dementia
  • Able to read and write in English
  • Able to access the internet
  • Provides care for at least 10 hours per week
  • Reports a minimum stress level of 4 or more on a 10-point scale
  • Lives in rural area of the United States (self-identified, or zip code is a Rural Urban Commuting Area Code)

  • Anticipated inability to complete the 12-month follow-up (e.g., planned travel)
  • Care recipient lives in a skilled nursing or similar facility

Rural caregivers often experience physical isolation and well-documented rural disparities in health care access and quality. Many rural dementia caregivers experience serious health consequences that can limit their ability to continue providing care. Thus, there is a pressing need for effective, scalable, and accessible programs to support rural dementia caregivers.

Building Better Caregivers is an online, six-week, interactive, small-group workshop for rural caregivers of individuals with Alzheimer's disease or related dementias. The online workshop is designed to address self-management, social support, and skills-building in order to reduce stress and depression. Study participants will be randomly assigned to either participate in the workshop or to receive two brief 15-30 minute phone calls and a handbook on dementia and caregiver resources while they wait to be moved into the workshop group. Rural caregivers will be recruited throughout the United States.

University of California, San Francisco

  • National Institute on Aging (NIA)

Name Role Affiliation
Veronica Yank, MD Principal Investigator University of California, San Francisco

Name Phone Email
Veronica Yank, MD 415-476-9654 veronica.yank@ucsf.edu
Jasmine Santoyo-Olsson, MS 1-833-634-0603 jasmine.santoyo-olsson@ucsf.edu

NCT04428112

Evaluating the Effectiveness of an Online Small-Group Self-Management Workshop for Rural Caregivers of Individuals With Alzheimer's Disease and Related Dementias