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A-LIST: Patients and Families Transforming Alzheimer's Disease

Recruiting

The A-LIST is an online community of people with (or at risk for) Alzheimers disease, other dementias, and mild cognitive impairment (MCI), along with current and former care partners. This study is designed to increase patient and caregiver engagement in research.

Minimum Age Maximum Age Gender Healthy Volunteers
18 Years 100 Years All Yes
August 15, 2018
December 31, 2021
10000

  • Resident of the United States or Canada
  • Diagnosed or suspected Alzheimer's disease or releated dementia
  • Diagnosed or suspected MCI
  • Present or former care partner for a loved one with Alzheimer's disease
  • Able to speak, read, and understand English

Participants in the A-LIST contribute patient and caregiver insights through surveys on varied topics, such as patient and caregiver preferences, patient-doctor relationships, clinical trials, caregiver health, and technology. Information is gathered from a secure system and stored in an HIPAA-compliant database.

For more information, visit the A-LIST website.

UsAgainstAlzheimer's

Name Role Affiliation
Theresa Frangiosa, MBA Principal Investigator UsAgainstAlzheimer's

Name Phone Email
Virginia Biggar, BA 301-452-1123 vbiggar@usagainstalzheimers.org
Theresa Frangiosa, MBA 908-872-5815 tfrangiosa@usagainstalzheimers.org

NCT04466722

A-LIST What Matters Most Insights Series