Skip to main content

Individualized Online Care Planning Tool for Family Members of Persons With Dementia

Recruiting

This study will test an online care planning tool called Care to Plan. The tool is designed to efficiently link dementia caregivers to the services that may be most appropriate for them and suited to the needs of their relatives living with Alzheimer's disease or a related dementia.

Minimum Age Maximum Age Gender Healthy Volunteers
21 Years N/A All Yes
September 1, 2019
August 1, 2021
120

Care Recipient:

  • Physician diagnosis of Alzheimer's disease or a related dementia

Caregiver:

  • English-speaking
  • Self-identifies as someone who provides support and care to a person with dementia
  • Willingness to use Care to Plan
  • Resides in one of four Riverside health regions in Virginia (based on zip code)

  • History of a serious mental health disorder, the symptoms of which have gotten worse in the last six months OR not receiving steady, ongoing pharmacological or other treatment for these symptoms

There are many interventions designed to help caregivers with the more challenging aspects of dementia care. However, there is a need to understand which caregivers are most likely to benefit from different types of services and to provide more individualized information tailored to the unique needs of caregivers and/or people living with Alzheimer's disease or a related dementia (ADRD).

Care to Plan is an online care planning tool designed to offer a more efficient, user-directed process to link dementia caregivers to the services that may be most appropriate for them, based on their needs, the needs of their relatives living with dementia, and other contextual characteristics.

Study participants will be family caregivers of persons with ADRD who seek services in the Riverside Health System in the state of Virginia. Participants will be randomly assigned to either receive the Care to Plan intervention or usual care. Caregiver recipients of the Care to Plan intervention will receive help to enroll in a recommended support service, if desired.

Name City State Zip Status Primary Contact
Riverside Health System
Virginia Recruiting Joseph Gaugler, PhD
612-626-2485
gaug0015@umn.edu

University of Minnesota

  • National Institute on Aging (NIA)

Name Role Affiliation
Joseph E Gaugler, PhD Principal Investigator University of Minnestoa

Name Phone Email
Joseph E Gaugler, PhD 612-626-2485 gaug0015@umn.edu
Katie Louwagie, DNP 612-626-4776 wocke007@umn.edu

NCT03901456

Care to Plan: Preliminary Efficacy of a Tailored Resource for Family Members of Persons With Dementia