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GeneMatch

Recruiting

The GeneMatch program, part of the Alzheimer's Prevention Registry, aims to identify people interested in participating in research studies or clinical trials based in part on their genetic background. GeneMatch will collect genetic information from participants which may be used to match them to studies. Participants are under no obligation to pursue these study opportunities.

Minimum Age Maximum Age Gender Healthy Volunteers
55 Years 75 Years Both Yes
November 2015
December 2030
500000

  • Willing to provide basic demographic, medical history, and contact information
  • Consent to APOE genotyping without receiving results
  • Resident of the United States

  • Unable to comply with GeneMatch requirements
  • Self-reported diagnosis of dementia or any other objective cognitive impairment syndrome

The primary purpose of GeneMatch is to identify and characterize a large group of people who are interested in, and may be eligible to participate in, preclinical Alzheimer's disease clinical studies and trials based on their genetic background. Participation in these research studies is voluntary.

GeneMatch will provide a cheek swab kit for collecting a genetic sample to determine which copies of the apolipoprotein E (APOE) gene a person has. GeneMatch will use the APOE test results to match enrollees to research studies they may be interested in. GeneMatch will not disclose the results of the APOE test to enrollees, but studies to which enrollees are referred may require such disclosure. All information will remain secure and confidential.

For more information, visit www.endALZnow.org/GeneMatch, or call 1-888-786-7259 or email GeneMatch@endALZnow.org

Name City State Zip Status Primary Contact
Banner Alzheimer's Institute
Phoenix Arizona 85006 Recruiting Trisha Walsh, MSW

Trisha.Walsh@bannerhealth.com
Mayo Clinic Arizona
Scottsdale Arizona 85259 Recruiting Cheryl Hubbell

Banner Sun Health Research Institute
Sun City Arizona 85351 Recruiting Nadira Trncic

ATP Clinical Research, Inc
Costa Mesa California 92626 Recruiting Bobby Shih

Georgetown University
Washington District of Columbia 20057 Recruiting Wesley Horton

University of Miami Center on Aging
Miami Florida 33136 Recruiting Nicole Brenson

Compass Research, LLC
Orlando Florida 32806 Recruiting Jennifer Trotter

Compass Research, LLC
The Villages Florida 32162 Recruiting Jennifer Millan

Medical Research Health Education Foundation,
Columbus Georgia 31909 Recruiting Carla Burton

Hawaii Pacific Neuroscience
Honolulu Hawaii 96817 Recruiting Ashlea Chandler

Great Lakes Clinical Trials
Chicago Illinois 60640 Recruiting Steve Satek

University of Kansas Medical center - Alzheimer's Disease Center
Fairway Kansas 66205 Recruiting Aiden Bondurant

Cleveland Clinic Lou Ruvo Center for Brain Health
Las Vegas Nevada 89106 Recruiting Priscilla Sandoval

University of Rochester Medical Center, AD-CARE
Rochester New York 14620 Recruiting Susan Salem-Spencer

ANI Neurology, PLLC dba Alzheimer's Memory Center
Charlotte North Carolina 28270 Recruiting Shereen Bolouri

University Hospitals Cleveland Medical Center
Beachwood Ohio 44122 Recruiting Parianne Fatica

Abington Neurological Associates Ltd.,
Willow Grove Pennsylvania 19090 Recruiting Denise Gallagher

Butler Hospital Memory and Aging Program
Providence Rhode Island 02906 Recruiting Jessica Alber

Roper St. Francis Hospital
Charleston South Carolina 29401 Recruiting Abigail O'Connell

Senior Adults Specialty Research
Austin Texas 78757 Recruiting Meredith Draper

Clinical Neuroscience Research Assoc. dba. The Memory Clinic
Bennington Vermont 05201 Recruiting

Medical College of Wisconsin
Milwaukee Wisconsin 53226 Recruiting Ashley Langford

Banner Health

Name Role Affiliation
Jessica B. Langbaum, PhD Principal Investigator Banner Alzheimer's Institute

Name Phone Email
Trisha Walsh, MSW 1-888-STOP-ALZ (1-888-786-7259) GeneMatch@endALZnow.org

NCT02564692

Alzheimer's Prevention Registry GeneMatch Program