Skip to main content

GeneMatch

Active, not recruiting

The GeneMatch program, part of the Alzheimer's Prevention Registry, aims to identify people interested in participating in research studies or clinical trials based in part on their genetic background. GeneMatch will collect genetic information from participants which may be used to match them to studies. Participants are under no obligation to pursue these study opportunities.

Minimum Age Maximum Age Gender Healthy Volunteers
55 Years 75 Years Both Yes
November 2015
December 2030
500000

  • Willing to provide basic demographic, medical history, and contact information
  • Consent to APOE genotyping without receiving results
  • Resident of the United States

  • Unable to comply with GeneMatch requirements
  • Self-reported diagnosis of dementia or any other objective cognitive impairment syndrome

The primary purpose of GeneMatch is to identify and characterize a large group of people who are interested in, and may be eligible to participate in, preclinical Alzheimer's disease clinical studies and trials based on their genetic background. Participation in these research studies is voluntary.

GeneMatch will provide a cheek swab kit for collecting a genetic sample to determine which copies of the apolipoprotein E (APOE) gene a person has. GeneMatch will use the APOE test results to match enrollees to research studies they may be interested in. GeneMatch will not disclose the results of the APOE test to enrollees, but studies to which enrollees are referred may require such disclosure. All information will remain secure and confidential.

For more information, visit www.endALZnow.org/GeneMatch, or call 1-888-786-7259 or email GeneMatch@endALZnow.org

Name City State Zip Status Primary Contact
Banner Alzheimer's Institute
Phoenix Arizona 85006

Mayo Clinic Arizona
Scottsdale Arizona 85259

Banner Sun Health Research Institute
Sun City Arizona 85351

ATP Clinical Research, Inc
Costa Mesa California 92626

Roaring Fork Neurology
Basalt Colorado 81621

Colorado Springs Neurological Clinic
Colorado Springs Colorado 80907

New England Institute for Clinical Research
Stamford Connecticut 06905

Georgetown University
Washington District of Columbia 20057

JEM Research Institute
Atlantis Florida 33462

University of Miami Center on Aging
Miami Florida 33136

Miami Dade Medical Research Institute, LLC
Miami Florida 33176

Compass Research, LLC
Orlando Florida 32806

Compass Research, LLC
The Villages Florida 32162

Medical Research Health Education Foundation,
Columbus Georgia 31909

Hawaii Pacific Neuroscience
Honolulu Hawaii 96817

Advanced Clinical Research
Meridian Idaho 83642

Great Lakes Clinical Trials
Chicago Illinois 60640

AMITA Health Alexian Brothers Neurosciences Research Institute
Elk Grove Village Illinois 60007

University of Kansas Medical center - Alzheimer's Disease Center
Fairway Kansas 66205

Boston University School of Medicine Alzheimer's Disease Center
Boston Massachusetts 02118

Memory Center / Hattiesburg Clinic
Hattiesburg Mississippi 39401

Cleveland Clinic Lou Ruvo Center for Brain Health
Las Vegas Nevada 89106

Empire Neurology
Latham New York 12110

University of Rochester Medical Center, AD-CARE
Rochester New York 14620

Clarity Clinical Research
Syracuse New York 13057

ANI Neurology, PLLC dba Alzheimer's Memory Center
Charlotte North Carolina 28270

Triad Clinical Trials
Greensboro North Carolina 27410

University Hospitals Cleveland Medical Center
Beachwood Ohio 44122

Abington Neurological Associates Ltd.,
Willow Grove Pennsylvania 19090

Butler Hospital Memory and Aging Program
Providence Rhode Island 02906

Roper St. Francis Hospital
Charleston South Carolina 29401

Senior Adults Specialty Research
Austin Texas 78757

Clinical Neuroscience Research Assoc. dba. The Memory Clinic
Bennington Vermont 05201

Medical College of Wisconsin
Milwaukee Wisconsin 53226

Banner Health

Name Role Affiliation
Jessica B. Langbaum, PhD Principal Investigator Banner Alzheimer's Institute

Name Phone Email
David Gordon, MS 1-888-STOP-ALZ (1-888-786-7259) GeneMatch@endALZnow.org

NCT02564692

Alzheimer's Prevention Registry GeneMatch Program