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Dementia Caregiver Chronic Grief Management: A Live Online Video Intervention

Recruiting

This study will test the effects of an online grief management intervention on caregivers who have recently placed a family member with Alzheimer's disease or a related dementia in a long-term care facility. The treatment is designed to decrease caregiver grief, depression, and anxiety and to improve satisfaction with care after placement.

Minimum Age Maximum Age Gender Healthy Volunteers
21 Years N/A All Yes
April 1, 2019
July 2021
144

  • Identified as family member, fictive kin (self-identified family member), or partner of care recipient
  • Within the first year of care recipient's permanent placement in a long-term care facility
  • Care recipient is a resident in a dementia or memory care unit in the long-term care facility, where a diagnosis of Alzheimer's disease or a related dementia (ADRD) is mandatory
  • Basic computer literacy and in-home Internet access
  • Able to speak, read, and write English
  • Not currently attending another ADRD caregiver grief management group
  • Experiencing high to moderate levels of grief per screening with the Marwit-Meuser Caregiver Grief Inventory-Short Form (70 and above)
  • Experiencing high levels of depressive symptoms per screening with Patient Health Questionnaire-9 (10 and above)

  • Does not meet inclusion criteria

The Chronic Grief Management Intervention consists of eight weekly sessions delivered in a group format through live streaming video, using the Adobe Connect platform and iPads. Participants will be randomly assigned to either the intervention or minimal treatment group, which will receive written information about late-stage Alzheimer's disease and related dementias. Researchers will measure changes in caregiver chronic grief, symptoms of depression and anxiety, positive states of mind, satisfaction with care provided in the facility, and conflict with staff.

Name City State Zip Status Primary Contact
Rush University Medical Center
Chicago Illinois 60612-3806 Recruiting Olimpia Paun, PhD
312-942-6996
Olimpia_Paun@rush.edu

Rush University Medical Center

Name Role Affiliation
Olimpia Paun, PhD Principal Investigator Rush University Medical Center

Name Phone Email
Ilse Salinas 312-942-7888 ilse_salinas@rush.edu

NCT03593070

Dementia Caregiver Chronic Grief Management: A Live Online Video Intervention