Skip to main content

D-CARE: The Dementia Care Study

Recruiting

This study will compare the effectiveness and cost-effectiveness of health systems-based dementia care versus community-based dementia care. Researchers will investigate the effects on behavioral symptoms of people with dementia and their caregivers' distress levels.

Minimum Age Maximum Age Gender Healthy Volunteers
18 Years N/A All No
July 8, 2019
June 30, 2023
2150

  • Diagnosis of dementia established by a physician or other primary care provider
  • Primary care provider who is willing to partner with the study
  • Caregiver who speaks English or Spanish, and has a phone

  • Resides in a nursing home at the time of recruitment
  • Enrolled in hospice
  • Plans to move out of the area within the coming year
  • Caregiver is unwilling or anticipates being incapable of providing self-reported outcome measures for 18 months
  • Caregiver is paid and is not a relative or friend of the person with dementia
  • Caregiver has cognitive impairment
  • Participation in another dementia intervention study

In this study, people with dementia and their caregivers will be randomly assigned to a dementia care intervention or enhanced usual care for 18 months. Health systems-based dementia care will be provided by a dementia care specialist (nurse practitioner or physician assistant), who will tailor and facilitate dementia care delivery in collaboration with primary care physicians. Community-based dementia care will be provided by a care consultant (social worker or nurse with the community organization), who will tailor the content according to patient and caregiver preferences. Participants receiving enhanced usual care will be provided with standardized educational materials and referral to the Alzheimer's Association national hotline to speak to a consultant for decision-making support, crisis assistance, caregiver education, and referral to local programs and services.

Name City State Zip Status Primary Contact
Wake Forest Baptist Medical Center
Winston-Salem North Carolina 27109 Recruiting Katherine Currie
844-476-8156
DCARE_UM@wakehealth.edu
Geisinger Health
Wilkes-Barre Pennsylvania 18765 Not yet recruiting Ilene Ladd
570-808-7215
University of Texas Medical Branch
Galveston Texas 77555 Recruiting Roxy Hirst, MS, CCRP
409-266-9641
rmhirst@utmb.edu
Baylor Scott & White
Temple Texas 76508 Recruiting Sitara Abraham
254-771-4836
BSWHDCARE@bswhealth.org

University of California, Los Angeles

  • Patient-Centered Outcomes Research Institute
  • National Institute on Aging (NIA)
  • Yale University
  • Benjamin Rose Institute on Aging
  • Baylor Scott and White Health
  • Wake Forest University Health Sciences
  • University of Texas
  • Geisinger Clinic
  • University of Oklahoma
  • RAND

Name Role Affiliation
David Reuben, MD Principal Investigator University of California, Los Angeles
Thomas Gill, MD Principal Investigator Yale University
David Bass, PhD Principal Investigator Benjamin Rose Institute on Aging
Lee Jennings, MD Principal Investigator University of Oklohoma
Maya Lichtenstein, MD Principal Investigator Geisinger Clinic
Peter Peduzzi, MD Principal Investigator Yale University
Alan Stevens, PhD Principal Investigator Baylor Scott and White Health
Elena Volpi, MD Principal Investigator University of Texas
Jeffrey Williamson, MD Principal Investigator Wake Forest University Health Sciences
Christopher Callahan Study Chair Indiana University
Katie Maslow Study Chair Gerontological Society of America
Glen Moulton Study Director University of California, Los Angeles

Name Phone Email
Glen Moulton 1-310-312-0531 gmoulton@mednet.ucla.edu

NCT03786471

Comparative Effectiveness of Health System-based Versus Community-Based Dementia Care / A Pragmatic Clinical Trial of the Effectiveness and Cost-Effectiveness of Dementia Care