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Community Paramedic Coaching Program for Caregivers and People with Dementia

Recruiting

This pilot study is designed to evaluate the effectiveness of a community paramedic coaching program for caregivers of people with dementia, in coordination with the caregiver's primary health care team.

Minimum Age Maximum Age Gender Healthy Volunteers
60 Years N/A All No
January 28, 2020
June 2023
30

Participants with Dementia

  • Diagnosis or indication in medical record of mild to moderate dementia (any subtype)
  • English speaking
  • Lives in the community with primary informal caregiver
  • Patient of a University of Wisconsin (UW) primary care provider participating in the study

Caregivers

  • Adult informal caregiver of person eligible for this study
  • Lives in the same household as person with dementia
  • Has a working telephone
  • English speaking
  • Has a UW primary care provider

Participants with Dementia

  • Receiving intensive care management services
  • Receiving aggressive care for another condition (e.g., chemotherapy for cancer, surgery planned for problem)
  • In isolation due to contagious illness
  • Enrolled in home hospice
  • Currently incarcerated, in police custody, or ward of the state
  • Legally blind or deaf (unable to hear or see even with assistive devices)
  • Lacks decision-making capacity and no available legally authorized representative to provide consent

Caregivers

  • Employed by a professional/private agency to provide care
  • Diagnosis of dementia or cognitive impairment
  • In isolation due to contagious illness
  • Legally blind or deaf (unable to hear or see even with assistive devices) 

The intervention adapts the evidence-based REACH program (Resources Enhancing Alzheimer's Caregiver Health) for informal caregivers of people with dementia. In this study, caregivers will be coached by community parademics in one or two in-home sessions and over the phone during 1 year. Caregivers will receive information about dementia caregiving and local community resources such as social services, support groups, and transportation. Each home visit covers specific information about caregiving, building on strategies and behaviors covered in prior sessions.

The parademic coaches will be trained by master trainers from the Rosalynn Carter Institute (RCI) for Caregiving, a department of Georgia Southwestern State University, which oversees REACH sites nationally. The program will be formally coordinated with the participant and caregiver's primary care practice, allowing for care coordination and information sharing among participants, coaches, and clinic staff/providers. Coaches will use their medical knowledge but will not deliver medical care.

Outcome measures include health care and emergency services utilization, perceptions of health care quality, and caregiver satisfaction, anxiety, burden, and related psychosocial aspects of caregiving.

Name City State Zip Status Primary Contact
University of Wisconsin
Madison Wisconsin 53705 Recruiting Manish N Shah, MD, MPH
608-890-7187
mnshah@medicine.wisc.edu

University of Wisconsin, Madison

  • National Institute on Aging (NIA)

Name Role Affiliation
Manish N Shah, MD, MPH Principal Investigator University of Wisconsin, Madison

Name Phone Email
Manish N Shah, MD, MPH 608-890-7187 mnshah@medicine.wisc.edu

NCT04239924

Community Paramedic Coaching Program for Caregivers and People With Dementia (CP3D)