Brain Health Registry
The purpose of the online Brain Health Registry is to recruit and observe people who are interested in promoting healthy brain function through the prevention of brain diseases, disorders, and injuries in adults. Participation involves answering questions about your health, lifestyle, and medical history and taking online brain tests. Researchers hope to build a large pool of potential participants for clinical trials, reducing the time and cost of research.
|Minimum Age||Maximum Age||Gender||Healthy Volunteers|
The Brain Health Registry is an online registry for people interested in research on new treatments for Alzheimer's disease, Parkinson's disease, depression, post-traumatic stress disorder, and other conditions that affect brain function. Anyone age 18 years and older can join the Brain Health Registry. To enroll, participants complete basic contact and demographic information and consent to participate. After enrollment, participants complete questionnaires about health, lifestyle and medical history, as well as computerized tests of memory, attention, and speed of processing new information and organization.
Participants in the registry will be invited to repeat the questionnaires and brain tests every 3-6 months so researchers can gather information about changes in brain function over time. For most people, participation will take less than 3 hours per year. Currently, the online tests must be taken on a desktop or laptop, not on mobile devices such as tablets and smartphones.
Participants may give researchers permission to access medical records and may provide a saliva sample for genetic screening and a blood sample to better understand general health, but this is optional. They will also learn about future clinical trials that test diagnostic tools or potential treatments for brain disorders and be given an opportunity to participate.
University of California, San Francisco
|Michael W. Weiner, MD||Principal Investigator||University of California, San Francisco|
|Scott Mackin, PhD||Principal Investigator||University of California, San Francisco|
|Rachel L. Nosheny, PhD||Principal Investigator||University of California, San Francisco|
|Brain Health Registryfirstname.lastname@example.org|