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Alzheimer's Disease Genetics Study

Recruiting

The purpose of the Alzheimer's Disease Genetics Study is to identify and analyze the genes that cause late-onset Alzheimer's disease. Researchers are collecting genetic material from families in the United States in which two or more members have late-onset Alzheimer's.

Minimum Age Maximum Age Gender Healthy Volunteers
N/A N/A All Yes
June 2002
July 2021
3000

  • Two living family members diagnosed with Alzheimer's disease or other dementia with any age of onset
  • Biological samples available, such as fresh blood, immortalized lymphoblastic cell lines, or 3-5 grams of frozen cerebral cortex (fixed samples are not accepted)

  • Member of a family included in the National Institute of Mental Health AD Genetics Sib Pair collection

Qualifying families have two living, blood-related individuals who have been diagnosed with or are showing symptoms of Alzheimer's disease or dementia. Local study sites are located across the United States. Arrangements may be made for eligible families who do not live near a participating site. The biological samples and data from participants will be made available to qualified researchers.

This study does not include genetic counseling because no personal identifying information such as name or date of birth is attached to samples. Results of individual tests are not available to participants or family members.

Name City State Zip Status Primary Contact
Participants are being recruited from all over the United States
Multiple Locations Indiana 46202 Recruiting NCRAD Study Coordinator
800-526-2839
alzstudy@iupui.edu

Indiana University

  • National Institute on Aging (NIA)

Name Role Affiliation
Tatiana M. Foroud, PhD Principal Investigator National Cell Centralized Repository for Alzheimer's Disease and Related Dementias (NCRAD), Indiana University

Name Phone Email
NCRAD Study Coordinator 800-526-2839 alzstudy@iupui.edu

NCT00064870

National Cell Repository for Alzheimer's Disease (NCRAD)