The Division of Neuroscience, NIA and the Alzheimer’s Association cosponsored this advisory workshop. Approximately 100 basic science investigators, Alzheimer’s Disease Center directors, and NIH program staff were invited from both extramural and intramural communities. The workshop included presentations from NIH extramural program staff on Institute and NIH policy on the sharing of unique research resources. To help determine the availability of unique resources, a recent survey that tabulated the numbers of available Alzheimer's disease and control DNA and cell samples was presented. Presentations that concerned plans for the Indiana University Alzheimer’s Disease Center as a repository resource also were given. Selected Alzheimer's disease geneticists presented their perspectives on what new research resources the field need to progress. Substantive interactions followed during an open discussion of all participants on key issues, including cell and DNA banking needs, sample and data sharing, and informed consent. The participants also offered some suggestions for further research on the genetics of late-onset Alzheimer's disease.
Dr. Marilyn M. Miller