Following issuance of a Request for Applications for an Alzheimer’s Disease Data Coordinating Center in 1998, a cooperative agreement was awarded to the University of Washington at Seattle in July 1999. The data center was renamed the "National Alzheimer’s Coordinating Center." A steering committee sets operating policy, and the minimum data set collected from the Centers now has data on more than 60,000 subjects enrolled since 1984, and the data is accessible on NACC's Web site . NACC is planning to standardize data collection and enlarge the minimum data set by including more raw data on subjects seen by the ADCs. To accomplish this, a Clinical Taskforce is defining and standardizing the augmented collection of clinical data. In the future, it is hoped this will lead to better and more extensive research projects using standardized data collected from all Centers. New procedures have been adopted for widening access to the database by non-Center scientists wishing to use the data. NACC also has plans to publicize the database.
Eleven collaborative multi-Center studies have been funded by NACC. An additional five collaborative project R01 grants have been funded and are linked to NACC. For information about the projects, see NACC's Web site .