Federal Government
National Institute on Aging
Alzheimer’s Disease Education and Referral (ADEAR) Center
P.O. Box 8250
Silver Spring, MD 20907-8250
1-800-438-4380 (toll-free)
www.nia.nih.gov/alzheimers [1]
The National Institute on Aging (NIA), part of the National Institutes of Health, leads the Federal Government effort conducting and supporting research on Alzheimer’s disease and other forms of dementia. NIA's Alzheimer's Disease Education and Referral (ADEAR) Center offers information and publications on dementia and caregiving for families, caregivers, and professionals. Free publications include: Getting Your Affairs in Order [2], Nursing Homes: Making the Right Choice [3], End of Life: Helping with Comfort and Care [4], Frontotemporal Disorders: A Resource List [5], and many others.
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20894
1-800-352-9424 (toll-free)
1-301-468-5981 (TTY)
www.ninds.nih.gov [6]
MedlinePlus
National Library of Medicine
www.medlineplus.gov [7]
Organizations
Association for Frontotemporal Degeneration
Radnor Station Building 2, Suite 320
290 King of Prussia Road
Radnor, PA 19087
1-267-514-7221
1-866-507-7222 (toll-free)
www.theaftd.org [8]
ALS Association
27001 Agoura Road, Suite 250
Calabasas Hills, CA 91301-5104
1-800-782-4747 (toll-free)
www.alsa.org [9]
CurePSP
30 East Padonia Road, Suite 201
Timonium, MD 21093
1-800-457-4777
www.curepsp.org [10]
National Aphasia Association
350 Seventh Avenue, Suite 902
New York, NY 10001
1-800-922-4622 (toll-free)
www.aphasia.org [11]
WE MOVE
5731 Mosholu Avenue
Bronx, NY 10471
1-212-875-8312
www.wemove.org [12]
Caregiver Services
Eldercare Locator
1-800-677-1116 (toll-free)
www.eldercare.gov [13]
Family Caregiver Alliance
180 Montgomery Street, Suite 900
San Francisco, CA 94104
1-800-445-8106 (toll-free)
www.caregiver.org [14]
National Academy of Elder Law Attorneys, Inc.
1577 Spring Hill Road, Suite 220
Vienna, VA 22182
1-703-942-5711
www.naela.org [15]
Caregiver Support
FTD Support Forum
www.ftdsupportforum.com [16]
PPA Support Group
www.groups.yahoo.com/group/PPA-support [17]
Well Spouse Association
63 West Main Street, Suite H
Freehold, NJ 07728
1-800-838-0879
www.wellspouse.org [18]
Diagnosis, Treatment, and Research Centers
Columbia-Presbyterian Medical Center
Lucy G. Moses Center for Memory and Behavioral Disorders
New York, NY
1-212-305-6939
http://pathology.columbia.edu/previous/taub/centers.html [19]
Indiana University School of Medicine
Indiana Alzheimer’s Disease Center
Indianapolis, IN
1-317-278-5500
http://iadc.iupui.edu [20]
Johns Hopkins University School of Medicine
Frontotemporal Dementia and Young-Onset Dementias Clinic
Baltimore, MD
1-410-502-2981
www.hopkinsmedicine.org/Psychiatry/specialty_areas/
neuropsychiatry/frontotemporal_dementia [21]
Massachusetts General Hospital
Frontotemporal Disorders Unit
Boston, MA
1-617-726-5571
www.ftd-boston.org [22]
Mayo Clinic
Department of Neurology
www.mayoclinic.org/frontotemporal-dementia [23]
Rochester, MN
1-507-538-3270
www.mayoclinic.org/frontotemporal-dementia/rsttreatment.html [24]
Jacksonville, FL
1-904-953-0853
www.mayoclinic.org/frontotemporal-dementia/jaxtreatment.html [25]
Scottsdale, AZ
1-800-446-2279
www.mayoclinic.org/frontotemporal-dementia/scttreatment.html [26]
Northwestern University Feinberg School of Medicine
Cognitive Neurology and Alzheimer’s Disease Center
Chicago, IL
1-312-908-9339
www.brain.northwestern.edu [27]
University of California, Los Angeles
Frontotemporal Dementia & Neurobehavior Clinic
Los Angeles, CA
1-310-794-2550
www.adc.ucla.edu/Frontotemporal_Dementia_Clinic.asp [28]
University of California, San Francisco
Memory and Aging Center
San Francisco, CA
1-415-476-6880
www.memory.ucsf.edu/ftd [29]
University of Pennsylvania Health System
Center for Frontotemporal Dementia
Philadelphia, PA
1-215-662-3606
www.uphs.upenn.edu/ftd [30]
Acknowledgments
The National Institute on Aging at NIH thanks the following people for their contributions to the vision and creation of this booklet:
Darby Morhardt, MSW, LCSW
Research Associate Professor
Director of Education, Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine
Sandra Weintraub, PhD
Professor of Psychiatry, Neurology, and Psychology
Clinical Core Leader, Cognitive Neurology and Alzheimer’s Disease Center
Northwestern University Feinberg School of Medicine
Jennifer Merrilees, RN, MS
Clinical Nurse Specialist
Department of Neurology
Memory and Aging Center
University of California, San Francisco
Catherine Pace-Savitsky, MA
Former Executive Director
Association for Frontotemporal Degeneration
Susan Dickinson, MS, CGC
Executive Director
Association for Frontotemporal Degeneration
For additional copies of this publication or further information:
www.nia.nih.gov/alzheimers [1]
1-800-438-4380
National Institute on Aging
Alzheimer’s Disease Education and Referral Center