Skip to main content
U.S. flag

An official website of the United States government

Here's how you know

Here's how you know

Official websites use .gov
A .gov website belongs to an official government organization in the United States.

Secure .gov websites use HTTPS
A lock (  ) or https:// means you've safely connected to the .gov website. Share sensitive information only on official, secure websites.

Find more clinical trials

Living with Frontotemporal Dementia

Start: June 2012
End: February 2016
Enrollment: 60

What Is This Study About?

Frontotemporal dementia (FTD) is the second most common cause of early-onset dementia behind Alzheimer's disease, typically appearing between 40 and 60 years of age. However, few studies have looked at the personal experiences or coping styles of people with FTD. Researchers will interview people with FTD and their caregivers to understand their experiences with the disease. This information will help create better treatments and therapies for those affected by FTD.

Do I Qualify To Participate in This Study?

Minimum Age: 18 Years

Maximum Age: 99 Years

Must have:

Participants with FTD

  • Diagnosed with any variant of frontotemporal dementia, with documented cognitive impairment, for at least 3 months before interview for this study
  • Diagnosis made by a behavioral neurologist, neuropsychologist, psychiatrist, or a group consensus of any of the above in a specialized dementia center
  • Assessment of none (1) to mild (2) impairment category on the Dementia Disability Rating scale; assessment must be performed by a dementia care specialist with a medical degree
  • Fluent in English

Caregiver Participants

  • Spouse or partner who provides day-to-day care for the affected individual
  • In contact a minimum of 16 hours per week, on average, with the affected individual
  • Fluent in English

Must NOT have:

None listed.

If I Qualify, Who Do I Contact?

Contact study personnel listed either under the general study contact or the location nearest you.

Who Is the General Study Contact?

For more information about this study or the study sites, please contact Weiyi Mu at wmu2@jhmi.edu.

Need Help?

Contact NIA’s Alzheimer’s and related Dementias Education and Referral (ADEAR) Center at 800-438-4380 or email ADEAR.

Where Is This Study Located?

Who Sponsors This Study?

Lead: National Human Genome Research Institute

Source: ClinicalTrials.gov ID: NCT01738386

alzheimers.gov

An official website of the U.S. government, managed by the National Institute on Aging at the National Institutes of Health